RECENT POSTS
S6 E15 | World Down Syndrome Day and Unexpected Gifts with Jillian Benfield
On World Down Syndrome Day, Jillian Benfield, author of The Gift of the Unexpected, talks with me about whether it is hard to be
World Down Syndrome Day 2023
I love World Down Syndrome Day. It’s a day to simply pause and celebrate the goodness of a world with people with Down syndrome in
Screen Time Check-In
So a few weeks ago, Peter texted our family chat and asked everyone to share a screenshot of their screen usage numbers for the previous
Understanding the Tides
I have struggled with understanding the tides. I’ve looked up scientific explanations. I’ve asked teacher-friends to explain them to me. I’ve memorized the tide charts
Novels (for Adults) with Characters with Intellectual Disabilities
What novels have you read, recently or in a long-ago English class, that involve characters with Down syndrome or other intellectual disabilities? I’ve been thinking
A Birthday Gift for You
DOWNLOAD PDF GIFT What can we do to participate in healing? One year ago today, my book To Be Made Well was released. It’s a
Celebrate the Book Birthday of To Be Made Well
My friend Kiersten gave me a kintsugi bowl for my birthday last year. My birthday happens to be a few weeks after To Be Made
5-Book Giveaway
We are approaching the book birthday of To Be Made Well, so I’m celebrating with a 5-book giveaway with some other incredible authors over on
Make Time for Grown-Up Friendships
No one ever told me how important the friends I made in my twenties would be. There’s something about grown-up friendships. Those were the years
Nonverbal Individuals in the Church
When Penny was first born, an older Christian woman with a child with Down syndrome came to visit. She told me how her church hadn’t
MAiD and Lives Worth Living
Last week I spent a whole morning trying to write a post to share some thoughts with you on the sharp increase in medically assisted
I’m a Denominational Mutt
When it comes to Christianity, I am a denominational mutt. I was baptized as an infant in an Episcopal church. I was confirmed as a
S6 E14 | Lessons for Healing in a World That’s Sick with Lyndsey Medford
What do our bodies tell us about ourselves and our world? And how do we listen? Lyndsey Medford, author of My Body and Other Crumbling
Penny’s PATH
Each year, a team of friends, family, educators, and community members gathers to support and encourage Penny as we plan for her future. This annual
Holding the Lines as a Parent
I was going to be the parent who holds all the lines. The no-cell-phones-until-high-school line. The dresses-that-look-your-age-for-the-middle-school-dance line. The only-one-sugary-treat-a-day-and-only-a-small-one-at-that line. And the common-sense-media-tells- me-all-I-need-to-know-about-what-you-should-be-watching-on-television
Are People With Disabilities “Less Than” in Leviticus?
I recently opened my Instagram inbox and found a DM from one of you. I love receiving your questions about all sorts of things—parenting, disability,
The Only Thing You Stand to Lose
“All we stand to lose is the false self…” I’m in a season of transition right now. I just spent four hours packing away books
Self-Advocacy and Disability
All of us as parents walk a thin line between supporting our kids appropriately and offering them too much support. Honestly, it’s even harder to
