I Want to Celebrate Aging
I want to celebrate aging. I’m 47 years old, and I want to embrace the signs of age—freedom to be in this face and this body. I want to get…
My Daughter Does Not Exist to Teach Me a Lesson
Many people, when Penny was first born, talked to me about why it would be good for me to have a child with Down syndrome. They said: Penny would be…
Universal Design Matters to All of Us
The cool thing about universal design is that you don’t even notice it. I’ve been attending Hope Heals Camp at Camp McDowell in Nauvoo, Alabama for four summers now.1 I’ve heard people say that it…
Supporting Penny’s Goals
I used to be afraid to set goals for our daughter Penny, who has Down syndrome. It felt like if we didn't meet those goals, we would be passing judgment…
Happy 16th Birthday, William
William turned 16 last week. We ordered Indian food and ate ice cream cake and sang a song in his honor. The chorus (set to Taylor Swift’s Getaway Car) might…
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How Politicians Talk About Disability Matters
As we head into another election cycle, I’m paying attention to the language politicians use to talk about people with disabilities. This is not a partisan issue. I’ve heard politicians…
The Wonder of Kindness and Joy on Planet Earth
Last year, after we returned from a week at Hope Heals Camp, I wrote that camp “is not a place where we lay out a message of salvation, but rather…
Summer’s opportunities to watch, listen, and read with abandon
We asked our kids last week what metaphorical season they are in right now. All of them seemed confused. Literal summer also pretty much always feels like emotional summer to…
LeBron James: “Being a Winner Is a Curse”
I couldn’t help but feel sad when LeBron James said in an ad for the Olympics that “being a winner is a curse.” He says it doesn’t matter whether you’ve…
What advice would you give someone who is trying to make a plan for their future?
Penny and I did a presentation together at Hope Heals Camp about taking steps to plan for the future. If you want great advice and info from an 18-year-old who…
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