Inclusion vs the Real World
I’ve had to learn not to sacrifice our daughter on the altar of my ideology. When Penny was a toddler, I read an article about a teenager with Down syndrome…
What Do I Think About the Barbie With Down Syndrome?
What do I think about the new Barbie with Down syndrome? I was a little skeptical at first. She isn’t wearing glasses, which most people with Down syndrome wear. Her…
The Gift of Hope Heals
My heart is so full of gratitude and wonder. I had the great honor of spending the past few days with my friends from Hope Heals. It began with a…
7 Things I’m Loving Right Now
1. Shrinking Peter and I started watching Shrinking on AppleTV. We are only two episodes in so far, but we love the characters and the story and have laughed out…
What an Assessment of My Daughter’s Life Tells Me About Us
Every few years, Penny goes through a series of tests to determine the extent of her disability and, therefore, what services she is eligible to receive. I am tasked with…
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Making Hard Decisions With Love, Not Fear
Every day brings with it little hard parenting decisions. And every day I’m not sure at all that I get them right. Recently, I’ve decided to let Marilee bring her…
Some People Are Awesome
We’ve encountered our fair share of subtle discrimination over the years. The people who talk to me as if Penny isn’t present. The professionals who have predicted her future in…
Family Hikes Are Like Family Itself
At least one of them complains every single time. Whether it is a stroll by a river or a hike up a mountain or something in between, the thought of…
Living in Spiritual, and Therefore Material, Reality
It can seem as though the spiritual world and the material world are in tension. That we can have one or the other. We can’t serve both God and mammon,…
3 Things I’m (Still) Learning About Down Syndrome
Penny was on spring break last week. Our original hopes for a quick trip to Jamaica never materialized, but we did get to spend two nights with Penny’s friend Rachel…
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