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Amy Julia Becker
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    • To Be Made Well
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  • Blog
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    • Free Download: 5 Things I Wish I Had Known When Our Daughter Was Diagnosed With Down Syndrome
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in her own words

Read more about the article Penny in Her Own Words: What I Thought About Netflix’s Down for Love

Penny in Her Own Words: What I Thought About Netflix’s Down for Love

  • Post author:Amy Julia Becker
  • Post published:October 2, 2023
  • Post category:AJB Recommends/Disability/Down Syndrome/Parenting
  • Post comments:0 Comments

October is Down Syndrome Awareness Month! To celebrate, Penny will take over my account once a week and share her thoughts about teenage life, having a job, school, and more,…

Continue ReadingPenny in Her Own Words: What I Thought About Netflix’s Down for Love
Read more about the article Finding Other Ways to Communicate…

Finding Other Ways to Communicate…

  • Post author:Amy Julia Becker
  • Post published:August 30, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

“I call shotgun.” I remember these days, back when I squabbled with my sisters over who got to sit up front. Now we are reenacting the same conversations within my…

Continue ReadingFinding Other Ways to Communicate…
Read more about the article Why Go to Hope Heals Camp | Penny in Her Own Words

Why Go to Hope Heals Camp | Penny in Her Own Words

  • Post author:Amy Julia Becker
  • Post published:August 9, 2023
  • Post category:Disability/Down Syndrome/Family
  • Post comments:2 Comments

Years ago, I wrote a piece for the Huffington Post called “Missing Out on Beautiful.” It was prompted by my realization that it was really hard to capture Penny’s true…

Continue ReadingWhy Go to Hope Heals Camp | Penny in Her Own Words
Read more about the article Camp PALS and Belonging

Camp PALS and Belonging

  • Post author:Amy Julia Becker
  • Post published:July 13, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

Penny sent me a text on her first night of Camp PALS: “With my favorite girl at my favorite place.”  The next day, the text read, “Best year ever.” Penny…

Continue ReadingCamp PALS and Belonging
Read more about the article Penny: Facts About Me That I Believe Are True

Penny: Facts About Me That I Believe Are True

  • Post author:Amy Julia Becker
  • Post published:October 26, 2022
  • Post category:Disability/Down Syndrome/Family
  • Post comments:0 Comments

In honor of Down Syndrome Awareness Month, I asked Penny to share some thoughts about who she is, what matters to her, and what she would like other people to…

Continue ReadingPenny: Facts About Me That I Believe Are True
Read more about the article Penny Sharing in Church for DSA Month

Penny Sharing in Church for DSA Month

  • Post author:Amy Julia Becker
  • Post published:October 11, 2022
  • Post category:Disability/Down Syndrome/Faith/Family
  • Post comments:1 Comment

As a part of Down Syndrome Awareness Month, Penny had a chance to share some thoughts in front of our congregation on Sunday. She talked about what she appreciates about…

Continue ReadingPenny Sharing in Church for DSA Month
Read more about the article Camp PALS | Penny in Her Own Words

Camp PALS | Penny in Her Own Words

  • Post author:Amy Julia Becker
  • Post published:August 3, 2022
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

Penny had a chance to go to Camp PALS with her friend Rachel after two years of waiting due to Covid. PALS is one of the places where Penny comes…

Continue ReadingCamp PALS | Penny in Her Own Words
Read more about the article Interview With Penny for World Down Syndrome Day

Interview With Penny for World Down Syndrome Day

  • Post author:Amy Julia Becker
  • Post published:March 21, 2022
  • Post category:Disability/Down Syndrome/Family
  • Post comments:2 Comments

Penny, March 21 is World Down Syndrome Day. It’s a day to celebrate the lives of people like you, who were born with Down syndrome. Can you start by telling…

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Read more about the article Penny in Her Own Words: The PATH Process and Planning for the Future

Penny in Her Own Words: The PATH Process and Planning for the Future

  • Post author:Amy Julia Becker
  • Post published:January 5, 2022
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

I asked Penny if she would be willing to answer a few questions about her experience with the PATH process. These are her unedited responses:  How would you explain what…

Continue ReadingPenny in Her Own Words: The PATH Process and Planning for the Future
Read more about the article Penny in Her Own Words: Down Syndrome, School, and Friends

Penny in Her Own Words: Down Syndrome, School, and Friends

  • Post author:Amy Julia Becker
  • Post published:October 14, 2021
  • Post category:Disability/Down Syndrome/Family
  • Post comments:3 Comments

My name is Penny and I have an extra chromosome because I have Down syndrome.  In my daily life I wake up independently, make breakfast, and go to school. My…

Continue ReadingPenny in Her Own Words: Down Syndrome, School, and Friends
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photo of Amy Julia smiling and leaning her head against Penny's head, who is a young girl with Down syndrome. She sits on Amy Julia's lap.