photo by Bryan Johnson
Where Joy and Discomfort Meet
I know many of you are already back to school, or close to it. Here in Connecticut, we still have a few weeks of summertime. Our kids are playing Monopoly…
“Good Genes” and the Gift of Being Human
What if the real beauty of humanity isn’t found in “good genes,” but in the people our culture is most inclined to screen out? Last week in the newsletter, I mentioned…
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Our daughter has Down syndrome. Can she live a full life?
Here's what I know... Penny has different capacities when it comes to learning, but she has no limits on her capacity to love, or to live a full life. Our…
True Friendship Isn’t Built on Pity
Years ago, one of our kids came home from preschool and said, “She cries a lot and doesn’t share her toys.” Our child were talking about a classmate who had…
“You are a human. You belong here.”
I’ve been thinking a lot about belonging—what it feels like, where we find it, and how we create spaces that nurture it, spaces that say, "You are a human. You…
Photo Credit: © Camilynne Photography
The Lucky Few: Finding Delight and Belonging in Disability
When Heather Avis says she’s one of “the lucky few,” she means it. In this episode, we talk about growing up with our children with Down syndrome, what it means…
RFK Jr., Autism, and the Story We Need Instead
Apple YouTube Spotify More! Is disability a tragedy? Is it a gift? What place is there for grief and for joy in this story of disability so many of us…
Honoring the Good, the Hard, and the In Between
There’s something special about connecting with a person who not only lives in the small town where you grew up, but also shares a similar parenting journey. That’s how I…
Spread the Word to End the Word
To my knowledge, no one has ever called our daughter Penny by the most common slur used to demean people with intellectual disabilities, the r-word. I’m glad she hasn’t been…
How to Navigate the Pressures of Modern Family Life
Our front hall table is still covered in holiday cards. There are the uber-organized people who sent their cards at Thanksgiving, then the steady stream of happy faces that arrived…
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