Why Our Down Syndrome Clinic Appointment Is Worth It
Once a year, Penny and I travel to see a specialist and his team at the Down syndrome clinic at Massachusetts General Hospital. Every year, I wonder whether it will…
Christianity Today: God Teaches Me Through My Daughter with Down Syndrome
Adults with intellectual disabilities can have robust spiritual lives. Are we learning from them? Every Sunday afternoon, my daughter and I join a Zoom call with her friend and her…
Homecoming and Belonging
As a mother of a child with a disability, school events can be rough. I’m talking about everything from dances to sports to eating lunch in the cafeteria. I don’t…
Hope Moments: Living Out the Way of Jesus
I want to tell you about every moment from Hope Heals camp. But even with all my words and stories, and even with Ashley Monogue’s gorgeous photography (montage below), and…
Photo by Ashley Monogue
Hope Heals: Everyone Lifted Up
In typical American life, some people win and others lose. Some people get the award and others get no recognition. Some people are considered better than others. It’s not that…
Camp PALS and Belonging
Penny sent me a text on her first night of Camp PALS: “With my favorite girl at my favorite place.” The next day, the text read, “Best year ever.” Penny…
Inclusion vs the Real World
I’ve had to learn not to sacrifice our daughter on the altar of my ideology. When Penny was a toddler, I read an article about a teenager with Down syndrome…
Image courtesy of Canva Pro
Becoming a Culture of Belonging
How do you know if your community is a place of belonging? Professor Erik Carter has articulated ten “dimensions of belonging.” He created this model for churches to assess whether…
Down Syndrome’s “Exclusive Club”
I remember a day 17 years ago when Peter and I had spent hours with Penny at the Children’s Hospital of Philadelphia. We were exhausted. But he needed to attend…
You Can Be the Person Who Makes a Difference
I walked into the gym a few minutes late. Penny was perched on the sidelines along with the other cheerleaders. The boys’ basketball team had taken a slight lead. I…
