Helping Kids With Disabilities Move Toward Independence
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
2014 | Photo by Phil Dutton
I’m Working on a Video Teaching Series About Disability and Family
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
It’s Always Too Much | Four Thousand Weeks
So I’m in a really overwhelming time right now. We are in the midst of a long and drawn-out move. I’m staying in a rental house with Penny and Marilee…
Playdates and Disability
When I had a chance to talk with NBC News about parenting kids with disabilities, I was asked about playdates. Here, in a nutshell, is what I wish parents of…
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
Idolatry of Intellect
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
Penny Turns 18
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a group of other teenagers for…
Photo December 2008
When Love Shows Up
On Christmas we celebrate because love has shown up in our world. Not in some vague, abstract way. But love, in the flesh, in the person of Jesus. And when…
Our Visit to the Mass General Down Syndrome Clinic
Penny and I had a great visit to the Mass General Down Syndrome Clinic on Friday. Even though I so appreciated all the specialists and their respect and care for…
My Stressful, Fun Day at NBC
Before I headed into Rockefeller Center with my friend Niro to talk with NBC News about disability and friendship, we had to prepare. The brainstorming was the easy part. I…
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