I’ve talked with many parents of children and adults with intellectual disabilities who've experienced significant loss, and one of the things they've told me is that they didn't know how…
TAKE THE NEXT STEP PODCAST E31 —How can we help a child grieve when they may not have the words to tell us they’re hurting?Therapist Sissy Goff joins Amy Julia…
I have a planner that asks me to write down my “ideal week,” and every week I write down that I want all of my appointments to somehow fit into…
I recently had a chance to talk with the new mother of a baby girl with Down syndrome. This mom’s emotions were raw and beautiful, that same combination of wonder…
A few years ago, Peter and I both cried at our daughter's annual meeting to discuss her IEP (Individualized Education Plan) goals. We cried because we were so overwhelmed with…
TAKE THE NEXT STEP PODCAST E29 — Do you have to fight everyone around the table to advocate well for your child? Many parents feel intimidated by disability advocacy. They…
I read a book last year by Greg McKeown. My favorite part came at the end, when McKeown offered a personal story of his daughter having epilepsy. His first responses was…
TAKE THE NEXT STEP PODCAST E28 — Do you feel overwhelmed, isolated, or afraid of the future? Misty Coy Snyder knows those feelings well. After receiving a prenatal diagnosis of…
Somewhere along the way, my husband Peter and our daughter Penny, who has Down syndrome, developed an elaborate goodnight ritual involving a complicated handshake followed by cheering and naming sports…
TAKE THE NEXT STEP PODCAST E27 — How can my child with a disability learn and grow? What does it look like to cultivate capability while honoring their limitations? When…
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