Season of Waiting and Impossibility
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His position was announced a year ago. He…
Our Visit to the Mass General Down Syndrome Clinic
Penny and I had a great visit to the Mass General Down Syndrome Clinic on Friday. Even though I so appreciated all the specialists and their respect and care for…
My Stressful, Fun Day at NBC
Before I headed into Rockefeller Center with my friend Niro to talk with NBC News about disability and friendship, we had to prepare. The brainstorming was the easy part. I…
NBC News Now | Teaching Kids About Disability and Friendship
Watch Segment 1 Watch Segment 2 I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked…
Why Our Down Syndrome Clinic Appointment Is Worth It
Once a year, Penny and I travel to see a specialist and his team at the Down syndrome clinic at Massachusetts General Hospital. Every year, I wonder whether it will…
Christianity Today: God Teaches Me Through My Daughter with Down Syndrome
Adults with intellectual disabilities can have robust spiritual lives. Are we learning from them? Every Sunday afternoon, my daughter and I join a Zoom call with her friend and her…
Using Our Spiritual Imaginations to Envision a Good and Possible Future
I get overwhelmed easily when I think about the future, especially as Penny is about to turn 18. We need to make decisions with her about guardianship and transition planning…
What if I Feel Guilty as a Parent Because My Child Has a Disability?
What if I feel guilty as a parent because of my child’s disability? I was asked this question a few weeks ago when I was teaching for Joni and Friends.…
Stepping Off the Ladder of Comparison
I’ve been writing about Penny for a long time now. Along the way, I’ve often written of her accomplishments. The cuteness of hearing her pronounce “medium-hard words” when she asked…
Penny in Her Own Words: What I Want You to Know About My Life
What does life for a 17-year-old with Down syndrome look like? In case you’re curious, I asked Penny a few questions about her life as we come to the close…
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