NBC News Now | Teaching Kids About Disability and Friendship
Watch Segment 1 Watch Segment 2 I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked…
Why Our Down Syndrome Clinic Appointment Is Worth It
Once a year, Penny and I travel to see a specialist and his team at the Down syndrome clinic at Massachusetts General Hospital. Every year, I wonder whether it will…
Christianity Today: God Teaches Me Through My Daughter with Down Syndrome
Adults with intellectual disabilities can have robust spiritual lives. Are we learning from them? Every Sunday afternoon, my daughter and I join a Zoom call with her friend and her…
Using Our Spiritual Imaginations to Envision a Good and Possible Future
I get overwhelmed easily when I think about the future, especially as Penny is about to turn 18. We need to make decisions with her about guardianship and transition planning…
What if I Feel Guilty as a Parent Because My Child Has a Disability?
What if I feel guilty as a parent because of my child’s disability? I was asked this question a few weeks ago when I was teaching for Joni and Friends.…
Stepping Off the Ladder of Comparison
I’ve been writing about Penny for a long time now. Along the way, I’ve often written of her accomplishments. The cuteness of hearing her pronounce “medium-hard words” when she asked…
Penny in Her Own Words: What I Want You to Know About My Life
What does life for a 17-year-old with Down syndrome look like? In case you’re curious, I asked Penny a few questions about her life as we come to the close…
COGNOSCENTI | The future I imagine for my daughter
The future is uncertain. After high school, should Penny go to a community college? Will she be segregated and only socialize with peers with intellectual disabilities? I experienced a similar…
Penny in Her Own Words: Inclusion and High School Senior Project
What does inclusion look like for a senior with Down syndrome at our local public school? Here’s one example, in her own words, from an interview with Penny about her…
Friendship: Judgment and Jealousy or Celebration and Compassion
I learned early on in Penny’s life that if I spent my days comparing her to other kids, I would find myself in a place of judgment or jealousy. I…
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