What Happened When 30 High Schoolers Met Our Daughter
President Trump’s use of the r-word to describe Tim Walz sparked a huge increase in the word on social media, and the majority of that increase came from people using the word to…
The Joy I Didn’t Expect on a Saturday Morning
It is hard to convey the joy I felt while standing among six young adults with disabilities on a Saturday morning. In this case, I got to hang out with…
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A Friendship “Pile-Up of Goodness” in Our House
Anyone who has read this newsletter or followed me on social media knows that I have been beating a drum of taking one small step1 at a time toward a good future.2 There are days when…
COGNOSCENTI | What prenatal testing can’t tell you
Having a child with Down syndrome has been an irrational, unprovable good. In a world of increasing mechanization, measurement and merit, we need people like our daughter among us to…
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“I’m so delighted that my kids have Down syndrome.”
“I’m so delighted in the fact that my kids have Down syndrome and that I get to know them and love them. It feels like just the privilege and honor…
From Deficit to Delight: Changing the Disability Narrative
TAKE THE NEXT STEP PODCAST E6 — What if one powerful way to advocate for your child is simply to delight in who they are? Author and advocate Heather Avis…
Why I’ve Been Silent This Down Syndrome Awareness Month
It’s the middle of October, Down Syndrome Awareness Month, and I have done nothing to acknowledge this fact. We didn’t walk in a Buddy Walk. We haven’t posted stories about…
When You Want More for Your Family (and Your Life)
I would like to wave a magic wand and make the pain and discomfort of this life go away. And yes, I mean that in some big and existential sense…
Disability & Family: The Yes/No Filter Every Parent Needs
TAKE THE NEXT STEP PODCAST Overwhelmed by therapies, appointments, and never-ending “to-dos”? Author Jillian Benfield shares practical tools for families experiencing disability—offering parents guidance on setting limits, saying yes to…
One Step at a Time: Finding Hope in the Overwhelm
When our daughter who has Down syndrome turned 18, I felt completely overwhelmed. Those months were filled with Social Security questions. Paperwork. The unknown. It all felt like too much.…
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