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“I’m so delighted that my kids have Down syndrome.”
“I’m so delighted in the fact that my kids have Down syndrome and that I get to know them and love them. It feels like just the privilege and honor…
From Deficit to Delight: Changing the Disability Narrative
TAKE THE NEXT STEP PODCAST E6 — What if one powerful way to advocate for your child is simply to delight in who they are? Author and advocate Heather Avis…
Why I’ve Been Silent This Down Syndrome Awareness Month
It’s the middle of October, Down Syndrome Awareness Month, and I have done nothing to acknowledge this fact. We didn’t walk in a Buddy Walk. We haven’t posted stories about…
When You Want More for Your Family (and Your Life)
I would like to wave a magic wand and make the pain and discomfort of this life go away. And yes, I mean that in some big and existential sense…
Disability & Family: The Yes/No Filter Every Parent Needs
TAKE THE NEXT STEP PODCAST Overwhelmed by therapies, appointments, and never-ending “to-dos”? Author Jillian Benfield shares practical tools for families experiencing disability—offering parents guidance on setting limits, saying yes to…
One Step at a Time: Finding Hope in the Overwhelm
When our daughter who has Down syndrome turned 18, I felt completely overwhelmed. Those months were filled with Social Security questions. Paperwork. The unknown. It all felt like too much.…
Celebration Isn’t Just for the Finish Line
I’m learning, thanks to a lot of help from friends, that celebration isn’t just for the finish line. Many of us wait to celebrate until the big achievement arrives—the graduation,…
2013
Our daughter has Down syndrome. Can she live a full life?
Here's what I know... Penny has different capacities when it comes to learning, but she has no limits on her capacity to love, or to live a full life. Our…
Assumptions Without Curiosity
We just returned from two weeks in Italy as a family. It held all the things we had hoped for. We peeked into churches with some of my favorite Caravaggio…
Kids, Disability, and Relationships
Here’s what I wish parents of typically developing kids knew about disability and relationships: Disability isn’t a completely different experience. It’s often a magnified version of the human experience we all…
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