TAKE THE NEXT STEP PODCAST Overwhelmed by therapies, appointments, and never-ending “to-dos”? Author Jillian Benfield shares practical tools for families experiencing disability—offering parents guidance on setting limits, saying yes to…
When our daughter who has Down syndrome turned 18, I felt completely overwhelmed. Those months were filled with Social Security questions. Paperwork. The unknown. It all felt like too much.…
I’m learning, thanks to a lot of help from friends, that celebration isn’t just for the finish line. Many of us wait to celebrate until the big achievement arrives—the graduation,…
Here's what I know... Penny has different capacities when it comes to learning, but she has no limits on her capacity to love, or to live a full life. Our…
We just returned from two weeks in Italy as a family. It held all the things we had hoped for. We peeked into churches with some of my favorite Caravaggio…
Here’s what I wish parents of typically developing kids knew about disability and relationships: Disability isn’t a completely different experience. It’s often a magnified version of the human experience we all…
I’ve been thinking a lot about belonging—what it feels like, where we find it, and how we create spaces that nurture it, spaces that say, "You are a human. You…
When Heather Avis says she’s one of “the lucky few,” she means it. In this episode, we talk about growing up with our children with Down syndrome, what it means…
Penny decided to participate in our new church’s Sparkle Show with a friend by singing along to Taylor Swift’s Fearless. It’s no small thing that she wanted to be there,…
Grateful to write today for Cognoscenti/WBUR, Boston’s NPR station (read the full essay here): President Trump's domestic policy agenda, backed by Republicans, jeopardizes protections, research and support for people with disabilities,…
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