One of the things that comes with being a writer is rejection. Earlier this spring, I received another rejection for an essay I had written, alongside a series of polite…
Our daughter Penny is 20 years old and has Down syndrome. I cannot believe the outpouring of support, encouragement, and advice we received from far and wide—including multiple Delta executives…
When she was in fourth grade, Penny was supposed to do a project on a “big question.” She decided to learn about Down syndrome. Later, after she made her presentation,…
REIMAGINING THE GOOD LIFE PODCAST S10 E6—Is disability a tragedy to overcome, a burden to bear, an inspirational lesson for everyone else? Or is there a different story to tell,…
I just got off the phone with Delta Airlines. I explained that Penny—our 20-year-old daughter with Down syndrome—will be flying on her own for the first time this summer. We…
I mentioned last week that I have been thinking about a response to the controversy over YouTuber Jesse Ridgway’s announcement that his wife chose to terminate her pregnancy due to a…
Books, essays, podcast episodes, and more that I think are worth your time, plus recent cultural news that I’m paying attention to in the month of June… {Get my favorites…
Recently, Jesse Ridgway, a YouTube influencer, announced in a lengthy social media post that his wife had terminated her pregnancy at 20 weeks due to a diagnosis of trisomy 21,…
Most of us find reasons not to, but it is almost always worth it to just show up. My most recent opportunity to be reminded of this truth came on Saturday,…
When our daughter was diagnosed with Down syndrome, I realized that I had the words “Down syndrome baby” in my head. I remember thinking, “I don't like that language. It…
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