Penny’s Senior Night as a Cheerleader
If you had told me when she was born that our daughter with Down syndrome would be a Varsity cheerleader at our local high school, I don’t think I would…
S7 E 10 | Disability and the Language We Use with Andrew Leland
Apple YouTube Spotify More! Is blindness an incidental characteristic, like hair color? Or is it an identity? What language should we use to talk about disability, and why does it matter?…
2020 | Courtesy of Meghan Morse Photography
How to Talk With Siblings About Disability
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
Applying to the Emerging Pathways Program
Penny just submitted her application for an “emerging pathways” program on a local University campus. She spent hours filling out the forms and working on short essays to describe her…
Reimagining the Good Life. Disability. Faith. Culture.
Reimagining the Good Life. Disability. Faith. Culture. After months and months of conversation, that’s where we’ve landed as a concise way to invite people to explore the work I do.…
Reimagining the Good Life Podcast
Apple YouTube Spotify More! This podcast has a new name: Reimagining the Good Life. If you’re asking, “Why a name change?” and “Why now?”—I have answers! Author and teacher Patricia…
If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
The Disability Community Needs Grandparents Like These
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
Being Heumann
Can you imagine being denied the chance to even apply for a job? A job that you're qualified for and that you've studied for and that you're ready for, but…
Disability and Suffering Are Not the Same
Disability and suffering are not the same. I was so disappointed to read John McWhorter's misunderstanding of disability in the NYT. He wrote: "To say that someone “has” a disability…
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