Disability and Self-Care Skills: Nail Clipping
“I have never known a person with Down syndrome who could cut their own fingernails.” I heard these words, and my stomach fell a little bit. I had just asked…
2014 | Photo by Phil Dutton
I’m Working on a Video Teaching Series About Disability and Family
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
Playdates and Disability
When I had a chance to talk with NBC News about parenting kids with disabilities, I was asked about playdates. Here, in a nutshell, is what I wish parents of…
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
Idolatry of Intellect
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
Disability in “All the Light We Cannot See” Netflix Series
Have you watched the Netflix series All The Light We Cannot See? It is an awesome, subversive message about disability and, ultimately, about humanity. The main character is blind, and…
Bureaucracy and Disability
One of the things they tell you when you're a parent of a child with disabilities is that the bureaucracy is going to be awful. I thought it would be.…
Photo December 2008
When Love Shows Up
On Christmas we celebrate because love has shown up in our world. Not in some vague, abstract way. But love, in the flesh, in the person of Jesus. And when…
Life in the Woods
There was a day when I realized that no doctor would ever emerge to say about Penny having Down syndrome, “It was touch and go for a while there, but…
Our Visit to the Mass General Down Syndrome Clinic
Penny and I had a great visit to the Mass General Down Syndrome Clinic on Friday. Even though I so appreciated all the specialists and their respect and care for…
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