World Down Syndrome Day 2024
Happy World Down Syndrome Day! Our daughter Penny is 18, and we join thousands of other people around the globe who want to raise awareness about Down syndrome today. First,…
S7 E 12 | Reimagining Church Leadership and Disability with Andrew Draper
Apple YouTube Spotify More! Why does it matter that most churches don’t welcome people with disabilities in leadership? If a church excludes people with disabilities, is it really a church?…
Penny’s Final Night of Cheerleading
I don’t know why I wasn’t weepy with Penny’s final night of cheerleading. Maybe I’m in total denial that her time in high school is coming to an end. Maybe…
COMMENT MAGAZINE | The Blurring Is Part of the Beauty
Every summer our family of five travels to Nauvoo, Alabama, for one week. It’s an unusual decision—we leave the relatively cool nights and sunshiny days of July in Connecticut for…
S7 E11 | Flannery O’Connor and the Prophetic Imagination with Jessica Hooten Wilson
Apple YouTube Spotify More! Why would a Christian author immerse her stories in darkness? Why would she use violent imagery that directly relates to Christianity, race, class, disability, and illness?…
Changing Prepositions (from “for” to “with”)
As a part of an ongoing desire to honor Penny’s capacities as an adult with Down syndrome, I’m learning to change my prepositions. I keep catching myself talking about things…
Down Syndrome Through the Ages
How did ancient cultures treat people with Down syndrome? Researchers just discovered the remains of a few babies with Down syndrome from thousands of years ago, and they determined that…
Penny’s Senior Night as a Cheerleader
If you had told me when she was born that our daughter with Down syndrome would be a Varsity cheerleader at our local high school, I don’t think I would…
S7 E 10 | Disability and the Language We Use with Andrew Leland
Apple YouTube Spotify More! Is blindness an incidental characteristic, like hair color? Or is it an identity? What language should we use to talk about disability, and why does it matter?…
2020 | Courtesy of Meghan Morse Photography
How to Talk With Siblings About Disability
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
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