RECENT POSTS
Deficit-Based Language
The only way to receive special education services for kids is by focusing on their deficits. I received a DM from one of you the
Reruns With Jesus
Eleven years ago, we moved to a new town and Peter started a new job. I called it my “year of wine and nachos,” as
What Will Perfect Humanity Look Like?
I used to think I knew what perfect humanity looked like. I thought it had to do with virtues like kindness and honesty. I also
New Glasses: It Matters What I Think
Penny is getting new glasses, after 15 years of more or less the same ones. We’ve changed the prescription but not the frames, per her
March Introductions
Hello and welcome! I wanted to introduce myself once more: I write a lot. I have been writing posts of some sort for the internet
Books I’m Reading Right Now
I have three different sets of books. There are the early morning spiritual books, the ones that stay with my journal and my Bible. Then
Siblings on World Down Syndrome Day
Last weekend I mentioned to our kids that March 21 was World Down Syndrome Day. I reminded them that a few years ago, Marilee thought
Limitations vs Limiting beliefs
I’ve been wrestling lately with the difference between my limitations and my limiting beliefs. As I look ahead to our upcoming move, I don’t want
S6 E15 | World Down Syndrome Day and Unexpected Gifts with Jillian Benfield
On World Down Syndrome Day, Jillian Benfield, author of The Gift of the Unexpected, talks with me about whether it is hard to be
World Down Syndrome Day 2023
I love World Down Syndrome Day. It’s a day to simply pause and celebrate the goodness of a world with people with Down syndrome in
Screen Time Check-In
So a few weeks ago, Peter texted our family chat and asked everyone to share a screenshot of their screen usage numbers for the previous
Understanding the Tides
I have struggled with understanding the tides. I’ve looked up scientific explanations. I’ve asked teacher-friends to explain them to me. I’ve memorized the tide charts
Novels (for Adults) with Characters with Intellectual Disabilities
What novels have you read, recently or in a long-ago English class, that involve characters with Down syndrome or other intellectual disabilities? I’ve been thinking
A Birthday Gift for You
DOWNLOAD PDF GIFT What can we do to participate in healing? One year ago today, my book To Be Made Well was released. It’s a
Celebrate the Book Birthday of To Be Made Well
My friend Kiersten gave me a kintsugi bowl for my birthday last year. My birthday happens to be a few weeks after To Be Made
5-Book Giveaway
We are approaching the book birthday of To Be Made Well, so I’m celebrating with a 5-book giveaway with some other incredible authors over on
Make Time for Grown-Up Friendships
No one ever told me how important the friends I made in my twenties would be. There’s something about grown-up friendships. Those were the years
Nonverbal Individuals in the Church
When Penny was first born, an older Christian woman with a child with Down syndrome came to visit. She told me how her church hadn’t
MAiD and Lives Worth Living
Last week I spent a whole morning trying to write a post to share some thoughts with you on the sharp increase in medically assisted
I’m a Denominational Mutt
When it comes to Christianity, I am a denominational mutt. I was baptized as an infant in an Episcopal church. I was confirmed as a
S6 E14 | Lessons for Healing in a World That’s Sick with Lyndsey Medford
What do our bodies tell us about ourselves and our world? And how do we listen? Lyndsey Medford, author of My Body and Other Crumbling
