RECENT POSTS
Reimagining the Good Life Podcast
Apple YouTube Spotify More! This podcast has a new name: Reimagining the Good Life. If you’re asking, “Why a name change?” and “Why now?”—I have
If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One,
The Disability Community Needs Grandparents Like These
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just
When Gratitude Interrupts
Last week, everything fell apart. Marilee got Covid, which came with a fever approaching 105. The car broke down and needed to be taken in
S7 E8 | The Gifts of an Evolving Faith with Sarah Bessey
Apple YouTube Spotify More! Is faith something that should always stay the same? Or is it something that evolves by necessity? Sarah Bessey, author of
Being Heumann
Can you imagine being denied the chance to even apply for a job? A job that you’re qualified for and that you’ve studied for and
Disability and Suffering Are Not the Same
Disability and suffering are not the same. I was so disappointed to read John McWhorter’s misunderstanding of disability in the NYT. He wrote: “To say
Helping Kids With Disabilities Move Toward Independence
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve
January Favorites 2024
Get my favorites delivered to your inbox each month! Subscribe here! Right now, my desk (and floor and bedside table) are overflowing with books. I order
Black History Month
As we enter Black History Month tomorrow, I want to highlight some of the Black voices who have helped me expand my understanding of Black
Disability and Self-Care Skills: Nail Clipping
“I have never known a person with Down syndrome who could cut their own fingernails.” I heard these words, and my stomach fell a little
I’m Working on a Video Teaching Series About Disability and Family
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt
The Holdovers Is All About Grace
Okay, The Holdovers was just nominated for Best Picture by the Oscars. I want to submit that it is a deeply Christian film about disruptive
It’s Always Too Much | Four Thousand Weeks
So I’m in a really overwhelming time right now. We are in the midst of a long and drawn-out move. I’m staying in a rental
Playdates and Disability
When I had a chance to talk with NBC News about parenting kids with disabilities, I was asked about playdates. Here, in a nutshell, is
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more
Idolatry of Intellect
I didn’t realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about
Disability in “All the Light We Cannot See” Netflix Series
Have you watched the Netflix series All The Light We Cannot See? It is an awesome, subversive message about disability and, ultimately, about humanity. The
Here’s the question: What am I doing?
“Just do it.” “You deserve a break today.” “Think different.” I’ve been working with a consultant for the past few months in my own attempt
Bureaucracy and Disability
One of the things they tell you when you’re a parent of a child with disabilities is that the bureaucracy is going to be awful.
Retreating and Reimagining
A few times a year, I spend a few nights away from my family, by myself. This time, while I’m away for the week, I’m
