RECENT POSTS
Playdates and Disability
When I had a chance to talk with NBC News about parenting kids with disabilities, I was asked about playdates. Here, in a nutshell, is
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more
Idolatry of Intellect
I didn’t realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about
Disability in “All the Light We Cannot See” Netflix Series
Have you watched the Netflix series All The Light We Cannot See? It is an awesome, subversive message about disability and, ultimately, about humanity. The
Here’s the question: What am I doing?
“Just do it.” “You deserve a break today.” “Think different.” I’ve been working with a consultant for the past few months in my own attempt
Bureaucracy and Disability
One of the things they tell you when you’re a parent of a child with disabilities is that the bureaucracy is going to be awful.
Retreating and Reimagining
A few times a year, I spend a few nights away from my family, by myself. This time, while I’m away for the week, I’m
Two Resources for the Season of Lent
Two Resources for the Season of Lent: 1. Small Group Guide & Video Series 2. Daily Devotional For those of you who pay attention to
Our Song for Penny’s 18th Birthday
Penny requested a song on the occasion of her 18th birthday. She also gave us instructions on the tune—we could refer to You Belong With
Recap of Holiday Fun
Sometimes the holidays are one long stressful reminder of all the childhood wounds and irritations and conflicts you’ve ever tried to work through in therapy.
How to Reflect on a Just-Get-Through-It Year
“You aren’t going to figure it out. You’re just going to get through it.” My friend Patricia first said to me years ago, when I
Penny Turns 18
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a
Holy Longing
Christmas is a season of holy longing. Whether we are singing along to “Holly Jolly Christmas” or “Hark the Herald Angels Sing,” we are longing
When Love Shows Up
On Christmas we celebrate because love has shown up in our world. Not in some vague, abstract way. But love, in the flesh, in the
Holy Disruption
When Mary hears the message that she has been chosen by God to be the mother of Jesus, Luke tells us she was “troubled.” When
My Favorite Movies and Shows in 2023
8 of my favorite movies and shows that I watched in 2023: HEROIN(E) (documentary) Heroin(e) follows three women who are responding with so much competence
Life in the Woods
There was a day when I realized that no doctor would ever emerge to say about Penny having Down syndrome, “It was touch and go
December Favorites
Here are some of my recent favorite books, a podcast, and an essay, as well as a beautiful song: 1. Novel: Machines Like Me by
Season of Waiting and Impossibility
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His
Our Visit to the Mass General Down Syndrome Clinic
Penny and I had a great visit to the Mass General Down Syndrome Clinic on Friday. Even though I so appreciated all the specialists and
My Favorite Books of 2023
10 books I loved in 2023: NON-FICTION Emotional Lives of Teenagers by Lisa D’Amour I’ve referred to this book again and again to remember that
