Hope Heals Board Retreat
I have the great honor of serving on the Board of Hope Heals. What a gift to spend 36 hours with these fellow Board members as well as members of…
The Highs are Higher
“The highs are higher and the lows are lower.” Peter and I used to say that a lot about having a child with Down syndrome. In recent years, the emotions…
Denied Treatment and Education?!?
"People with developmental disabilities were granted the legal right to treatment in 1974..." -Exhibit Traces ‘Unfinished Journey’ Of Those With IDD Okay, wait. I know a lot about disability rights…
Prioritize Relationships
I gave our daughter Penny two choices for her senior year spring break—the Bahamas (where she has always wanted to go) or Atlanta. She chose Atlanta because going to Atlanta…
Connecting With People in Real Life | Festival of Faith & Writing
I don’t know how to capture the experience of the Festival of Faith and Writing last week. Of course, I listened to compelling speakers. And I loved preparing and offering…
S7 E14 | How to Honor Limits in a World That Doesn’t with Micha Boyett
Apple YouTube Spotify More! What's the difference between limitations and brokenness? What does it mean to be blessed? How can a dual diagnosis of Down syndrome and autism be a…
Provide Opportunities, Assume Possibility
Penny fell behind in ballet earlier this year. During cheer season, she missed a lot of classes and rehearsals. She also (unbeknownst to me) started sitting out of the rehearsals…
Let’s Drop “Low/High Functioning”
I was totally taken aback the first time someone asked me if our daughter Penny was low functioning. I didn't want to talk about any human in terms of how…
Penny Goes to College
Most people say that kids with intellectual disabilities fall off a cliff when they turn 18 and complete their time in high school. Even though most of them are still…
What Olivia Rodrigo’s Concert and the Eclipse Have (and Don’t Have) in Common
On Saturday night, I took Marilee and two friends to see Olivia Rodrigo at Madison Square Garden. On Monday, I lay on a dock on a lake in the Adirondacks…
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