I just learned about a recently named condition: Down syndrome regression disorder (DSRD) from an article (read for free here) in the Washington Post. But I also learned that the…
Apple YouTube Spotify More! In a society often obsessed with intelligence, can we reimagine a good life that encompasses joy, meaning, and respect for all? What does it mean to…
Peter and I have an odd story of meeting, and dating, and marriage. He was from New Orleans. I was from Connecticut. We met at 16, in boarding school. The…
There’s so much good content out there these days, it’s hard to know where to start. Here are a few of my favorite books, podcast episodes, and films from the…
What makes a disorder a disorder? Does it harm us to label each other with disorders? Or does it help us to identify areas where people need support? The Disruptors,…
What is "normal?" I don’t use the word normal very much anymore. It’s just one of the many ways my language has changed in the years since Penny was diagnosed…
How do I care for someone in pain? People have asked me this question. I’ve asked this question. And I thought it would be helpful to share advice from Katherine…
I am still trying to find a theater nearby that is showing the new film, Wildcat, directed by Ethan Hawke and starring his daughter Maya Hawke as Flannery O’Connor. I…
How do you make it through a wild weekend that includes one daughter’s dance rehearsals, another’s soccer games, your son’s performance in Hamlet, and your husband’s installation as a Head…
Apple YouTube Spotify More! How do you hold onto hope in the midst of suffering? How can we trust in the goodness of God in a world of pain? What…
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