Is Independence the Goal?
Every so often I get asked, “Do you think Penny will live independently?” I’ve started answering that question about my daughter who has Down syndrome by saying, “I never want…
The Disability Community Needs Grandparents Like These
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
Friendship Forms Durable Hope
What do I do? People in my family received a terminal diagnosis for their child. What do I do? A woman recently emailed me this question. When I wrote her…
Interdependent Healing
My new year has started off with heavy news from multiple friends. One whose husband moved out. Another who lost her job. Another whose sister is heading to a treatment…
