Every year, Penny and I visit the Down Syndrome Clinic at Mass General Hospital. (Here’s a behind-the-scenes look(!) at one of our recent visits to the Clinic.) Penny is an adult now,…
I’m two weeks into my new workshop, Reimagining Family Life with Disability. We have nearly 40 parents of children with disabilities who are Zooming in from across the United States—Vermont, Georgia,…
Read the Essay: Doctors Don't Know How to Talk About Down Syndrome Any parent who has received a prenatal or postnatal diagnosis of Down syndrome (or any other genetic condition)…
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