Penny’s Final Dance Recital
I never ever imagined Penny would dance for twelve years. I knew dance was a good activity for her as a little kid with Down syndrome. It rewarded repetition. It…
Why Belonging Matters
I’ve been thinking about the difference between inclusion and belonging. These thoughts have mostly been prompted by all the end-of-high school events for our daughter Penny, who has Down syndrome.…
Penny in Her Own Words: Senior Project Presentation
Intellectual disability does not need to prevent young adults from learning. With support, encouragement, and room to make mistakes and grow from them, students like our daughter Penny, who has…
screenshot of Washington Post photo
Biased Response to Patients with Down Syndrome
I just learned about a recently named condition: Down syndrome regression disorder (DSRD) from an article (read for free here) in the Washington Post. But I also learned that the…
S7 E17 | Chasing the Intact Mind with Amy Lutz, Ph.D.
Apple YouTube Spotify More! In a society often obsessed with intelligence, can we reimagine a good life that encompasses joy, meaning, and respect for all? What does it mean to…
May 2024 Favorites
There’s so much good content out there these days, it’s hard to know where to start. Here are a few of my favorite books, podcast episodes, and films from the…
What I Learned from “The Disruptors”
What makes a disorder a disorder? Does it harm us to label each other with disorders? Or does it help us to identify areas where people need support? The Disruptors,…
What Is Normal?
What is "normal?" I don’t use the word normal very much anymore. It’s just one of the many ways my language has changed in the years since Penny was diagnosed…
Ministry of Tears
How do I care for someone in pain? People have asked me this question. I’ve asked this question. And I thought it would be helpful to share advice from Katherine…
Wildcat Movie: Why Flannery O’Connor Matters
I am still trying to find a theater nearby that is showing the new film, Wildcat, directed by Ethan Hawke and starring his daughter Maya Hawke as Flannery O’Connor. I…
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