Apple YouTube Spotify More! Is disability a tragedy? Are disabled people “inspiring”? The language we use often reveals our assumptions about disability. Carrie Hahn, a pediatric speech-language pathologist and mother,…
One of the most heartbreaking aspects of being a mother is watching our kids get excluded. I’ve seen it at times for all three of them, but exclusion happens most…
I have felt discouraged and stuck. If I looked back through my journals, I’d find similar feelings detailed over the years, but that statement isn’t mine. A parent of a…
I used to hate setting goals for Penny. It felt like I was measuring her worth based on how quickly she achieved them. Now I see goal setting—for her and…
Happy New Year! We’ve taken down our tree and put away the gnomes and nutcrackers. The kids are back at school. We reviewed the highlights of the past year as…
Penny wants to work on cooking and baking skills this year. Usually, we are rushing around, so it is hard to let her work at her own pace. But over…
(Keep scrolling for video!) | Our daughter Penny danced for twelve years at Fineline Theatre Arts, which included many years of performing scenes from the Nutcracker. We moved this year,…
Step by step by step. For our daughter Penny, who has Down syndrome, the path toward adulthood and increasing independence involves many more deliberate and supported steps than it will…
I’ve written a lot from the perspective of a white, affluent, educated, able-bodied, married woman about the ways in which my demographic group has rates of anxiety and depression. Similarly,…
How do we decide who has a life worth living? I thought about this question as I listened to bioethicist Rosemarie Garland-Thomson, PhD, tell me about a group of friends.…
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