How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
Penny just submitted her application for an “emerging pathways” program on a local University campus. She spent hours filling out the forms and working on short essays to describe her…
Reimagining the Good Life. Disability. Faith. Culture. After months and months of conversation, that’s where we’ve landed as a concise way to invite people to explore the work I do.…
Apple YouTube Spotify More! This podcast has a new name: Reimagining the Good Life. If you’re asking, “Why a name change?” and “Why now?”—I have answers! Author and teacher Patricia…
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
Can you imagine being denied the chance to even apply for a job? A job that you're qualified for and that you've studied for and that you're ready for, but…
Disability and suffering are not the same. I was so disappointed to read John McWhorter's misunderstanding of disability in the NYT. He wrote: "To say that someone “has” a disability…
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
“I have never known a person with Down syndrome who could cut their own fingernails.” I heard these words, and my stomach fell a little bit. I had just asked…
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