I Never Thought I’d Do This
I have never really seen myself operating in the self-help space. When I write and speak, when I interview guests for Reimagining the Good Life, I like inviting people into the…
Introducing Take the Next Step Podcast
TAKE THE NEXT STEP PODCAST Welcome to Take the Next Step, a weekly podcast for parents of children with disabilities, offering practical guidance, encouragement, and hope.Each week we'll explore how to:Create…
Autism is not a “horror show.”
President Trump referred to autism as a “horror show” in a televised cabinet meeting this week. The language we use to describe disability matters. Speaking in sweeping, negative terms doesn’t help anyone.…
What if Dependence Is a Gift?
Our limits may hold the secret to flourishing. • Before I get into this week’s message, I want to thank all of you who participated in choosing a logo for…
photo by Bryan Johnson
Where Joy and Discomfort Meet
I know many of you are already back to school, or close to it. Here in Connecticut, we still have a few weeks of summertime. Our kids are playing Monopoly…
“Good Genes” and the Gift of Being Human
What if the real beauty of humanity isn’t found in “good genes,” but in the people our culture is most inclined to screen out? Last week in the newsletter, I mentioned…
Photos by Bryan Johnson
How Love Disrupts the Hierarchy
You may have noticed that I didn’t write a Substack last week. I took the week off because I was at Hope Heals Camp in Nauvoo, Alabama, with our family.…
Life, Animated
Journalist Ron Suskind’s son Owen was diagnosed with autism at age three. Over the course of the previous year, Owen had stopped talking and seemed more and more withdrawn from…
“The Work of Caring for My Daughter Will Never Be ‘Efficient’”
I am very grateful to Julie Kim for writing about the importance of the Department of Education—and her concern over the Trump administration’s cuts to that department and the recent…
2013
Our daughter has Down syndrome. Can she live a full life?
Here's what I know... Penny has different capacities when it comes to learning, but she has no limits on her capacity to love, or to live a full life. Our…
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