The Lucky Few: Finding Delight and Belonging in Disability
When Heather Avis says she’s one of “the lucky few,” she means it. In this episode, we talk about growing up with our children with Down syndrome, what it means…
Sparkle Show
Penny decided to participate in our new church’s Sparkle Show with a friend by singing along to Taylor Swift’s Fearless. It’s no small thing that she wanted to be there,…
Parents and Caregivers of Kids With Disabilities, I Need Your Help!
I’ve had a few different book ideas percolating for a while now, and I would love your help as I work to bring the next one into the world. For…
How Striving to Be Better Than Others Makes Us Worse
The other day, I was talking with our son, William, who’s a junior in high school. He’s starting to think about where he might want to go to college, and…
How We Spend Our Money as a Nation Says A Lot
“Your checkbook is a spiritual document,” the priest said. Peter and I were young and newlywed. We had been invited to a fundraiser for our local church. It was long…
COGNOSCENTI | For people with disabilities: Kindness is nice. Legal protections are necessary
Grateful to write today for Cognoscenti/WBUR, Boston’s NPR station (read the full essay here): President Trump's domestic policy agenda, backed by Republicans, jeopardizes protections, research and support for people with disabilities,…
Having a Disabled Child Doesn’t Doom a Marriage
I watched the viral video of Grace Clements embracing her dad, the President of Clemson University. They tumble onto the stage together and get up for a more subdued, though…
Grief and Disability
Grief and Disability from Matthew Mooney on the podcast When a family receives a diagnosis—when they learn their child has a disability—grief often follows. Matthew and Ginny Mooney define grief…
Does Disability Mean Tragedy?
Is disability a tragedy? Is it a gift? What place is there for grief and for joy in this story of disability so many of us are living within our…
Intergenerational and Interability Friendships
I feel like I should be too old to have camp friends, but I guess that’s one more gift of getting involved in Hope Heals. Our friend and Hope Heals…
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