I just learned about a recently named condition: Down syndrome regression disorder (DSRD) from an article (read for free here) in the Washington Post. But I also learned that the…
Apple YouTube Spotify More! In a society often obsessed with intelligence, can we reimagine a good life that encompasses joy, meaning, and respect for all? What does it mean to…
There’s so much good content out there these days, it’s hard to know where to start. Here are a few of my favorite books, podcast episodes, and films from the…
What makes a disorder a disorder? Does it harm us to label each other with disorders? Or does it help us to identify areas where people need support? The Disruptors,…
What is "normal?" I don’t use the word normal very much anymore. It’s just one of the many ways my language has changed in the years since Penny was diagnosed…
How do I care for someone in pain? People have asked me this question. I’ve asked this question. And I thought it would be helpful to share advice from Katherine…
I am still trying to find a theater nearby that is showing the new film, Wildcat, directed by Ethan Hawke and starring his daughter Maya Hawke as Flannery O’Connor. I…
Apple YouTube Spotify More! How do you hold onto hope in the midst of suffering? How can we trust in the goodness of God in a world of pain? What…
I’m two weeks into my new workshop, Reimagining Family Life with Disability. We have nearly 40 parents of children with disabilities who are Zooming in from across the United States—Vermont, Georgia,…
So here’s a beautiful model of how to create a space that benefits an entire community. I got to visit my friend Katie Kishore in Charlottesville last week and see…
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