Step by Step by Step | Increasing Independence
Step by step by step. For our daughter Penny, who has Down syndrome, the path toward adulthood and increasing independence involves many more deliberate and supported steps than it will…
Disability’s Beautiful Complication of Human Flourishing
I’ve written a lot from the perspective of a white, affluent, educated, able-bodied, married woman about the ways in which my demographic group has rates of anxiety and depression. Similarly,…
Culture’s Good-Life Mirage
How do we decide who has a life worth living? I thought about this question as I listened to bioethicist Rosemarie Garland-Thomson, PhD, tell me about a group of friends.…
A Life Worth Living? Reimagining Life, Choice, and Disability
Apple YouTube Spotify More! How do we decide who has a life worth living? Rosemarie Garland-Thomson, PhD, author and professor emerita of English and bioethics at Emory University, joins Amy…
One Way Churches Can Welcome People With Disabilities
Want to make your church more welcoming? Invite individuals with disabilities to lead in reading or prayer. MORE WITH AMY JULIA: FREE RESOURCE: 10 Way to Move Toward a Good…
“My Vote Makes a Huge Difference”
Does this election matter for people with disabilities and their families? Does this election matter to people with disabilities and their families? Our daughter Penny, who has Down syndrome, cast…
The Best Questions to Ask Parents
Here in Connecticut, we are settling into the rhythms of fall, with soccer games and afterschool activities and the waning temperatures of summer and the advent of golden leaves amidst…
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Welcoming Kids With Disabilities to Trick-or-Treat on Halloween
I’m thinking about Halloween for kids with disabilities. Part of what makes Halloween exciting is the idea of having fun and being together with other people. Parents, if you have…
Is Independence the Goal?
Every so often I get asked, “Do you think Penny will live independently?” I’ve started answering that question about my daughter who has Down syndrome by saying, “I never want…
Developmental Milestones for Children With Down Syndrome
I used to love developmental charts and graphs and measurements when it came to parenting. Then I hated them. And now I’m realizing their value all over again. So I…
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