Read the Essay: Doctors Don’t Know How to Talk About Down Syndrome
Any parent who has received a prenatal or postnatal diagnosis of Down syndrome (or any other genetic condition) can remember what happened. Researchers call them “flashbulb moments” because they are so deeply imprinted in our memories. I’ve shared my own story of that moment countless times over the years, and I’ve heard accounts from countless other parents. For many of us, our stories of learning our child’s diagnosis are hard, even, in some cases, traumatic. But only recently have we had data that supports our anecdotal knowledge that doctors have not accessed the training and resources they could in order to offer diagnoses in a more generous, supportive, and compassionate manner.
I had a chance to write about that study for TIME, and you can read more here.
Read the Essay: Doctors Don’t Know How to Talk About Down Syndrome
More with Amy Julia:
- Book: A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny
- Free Resource: Missing Out on Beautiful: Growing Up With a Child With Down Syndrome
- New York Times: I’m Thankful Every Day for the Decision I Made After My Prenatal Tests
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