Collection of Essays

Missing Out on Beautiful:
Growing Up With a Child With Down Syndrome

I’ve written tens of thousands of words about our experience as parents of a child with Down syndrome over the years, including my book A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny. Now I've combined some of these thoughts into a collection of essays.

These essays reflect our family’s experiences while Penny, our daughter who has Down syndrome, was a baby, a child growing up, and a student in middle school.

This collection of thoughts speaks to the significance of community—dance teachers, schoolteachers, churches, friends, and even acquaintances—who help to create a space not just of inclusion but of belonging for Penny and for our family.

Get the Missing Out on Beautiful essay collection!

And Check Out A Good and Perfect Gift

A Good and Perfect Gift

Faith, Expectations, and a Little Girl Named Penny