Many people, when Penny was first born, talked to me about why it would be good for me to have a child with Down syndrome.
They said: Penny would be good for me because she would help me to slow down. She would be good for me because she would teach me patience, and she would be good for me because she would help me confront my own perfectionism.
All of those things are true, but Penny does not exist in this world in order to be a lesson for my self-advancement. I never want to diminish her humanity or the humanity of any other person with a disability in order to prop myself up.
We receive lots of cultural messages about disability that just aren’t true. I love helping parents shift their mindsets as we reimagine family life with disability. Check out my workshop!
MORE WITH AMY JULIA:
- Workshop: Reimagining Family Life with Disability
- FREE RESOURCE: 10 Way to Move Toward a Good Future (especially for families affected by disability)
- Supporting Penny’s Goals
Let’s stay in touch. Subscribe to my newsletter to receive regular updates and reflections. Follow me on Facebook, Instagram, and YouTube and subscribe to my Reimagining the Good Life podcast.