Amy Julia sits in a bed and looks down at baby Penny in her arms

My Daughter Does Not Exist to Teach Me a Lesson

Many people, when Penny was first born, talked to me about why it would be good for me to have a child with Down syndrome.

They said: Penny would be good for me because she would help me to slow down. She would be good for me because she would teach me patience, and she would be good for me because she would help me confront my own perfectionism.

All of those things are true, but Penny does not exist in this world in order to be a lesson for my self-advancement. I never want to diminish her humanity or the humanity of any other person with a disability in order to prop myself up.

We receive lots of cultural messages about disability that just aren’t true. I love helping parents shift their mindsets as we reimagine family life with disability. Check out my workshop!

[image description: graphic with a photo of Amy Julia's family standing outside in front of marsh grasses and water behind them; Text overlay says “Reimagining Family Life with Disability workshop" inside of blue and gold partial circles. Text at the top says: Live workshop, Online course, video teaching]


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